"That year, in my bitterest moments -- bitterness being the taste of poison, the evolved displeasure that says, Do Not Eat -- I'd think, Great. Another climb out of the canyon, just to get to the plateau where other children are already toddling toward the horizon, hand in hand with happy parents. Our frustration with eating became a species of a general discontent: the longing, wistful and bitter turns, for the normal childhood, the one that was supposed to happen. It is, of course, nostalgia for a projection. It dies hard. Even now, years later, it feels sometimes as if the rest of the world is light enough to walk on clouds and live in cities there, while we have sunk, under the weight of a single chromosome, into a valley of intermittent rain." p. 108The work is poignant, and I loved his reflections on work and family. He is a first-class writer (he used to teach English and composition at the university level). The biggest downside is that, sometimes, there were many details that did not interest me, but it would definitely interest someone who was the parent or grandparent of a Down Syndrome child or worked with one.
I just saw that he will be coming to our May 19th book club discussion, but I think I am speaking at a retreat that weekend. I would have loved to meet him, but as I look at his picture in the inside of the jacket, I have seen him around town! I'll have to introduce myself next time.